Kelly Plessis

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patient advocacy community engagement fund raising rare diseases patient navigation research building awareness public health patient support healthcare advocacy genetic counseling research initiatives resource hub counseling services awareness campaigns fundraising events donor engagement educational resources clinical trials patient stories healthcare policy support groups caregiver resources patients rights congenital disorders rare disease policy inclusive healthcare mental health support health equity health services rare disease awareness community hub patient id cards rare disease day family support ngo healthcare services rare disease management non-profit organization awareness days public donations volunteer opportunities research collaborations access to treatment healthcare guidelines living with rare diseases emergency support health education rare disease statistics healthcare challenges information resources digital support platforms fund-raising health wellness & fitness health care hospital & health care